Wednesday, July 20, 2011

What the Next Few Months of My Life Will Consist of....

I just got home today and as of right now I have appointments to go back to Rochester in August and December.  Yesterday the neurologist said the spot on my spinal cord is mainly just scarring and is caused directly by my scoliosis.  The scarring is right where my my spine curves the worst.  After an ultrasound on my right kidney they found 3-5 cysts on that one kidney but they are 'renal cysts' so they are totally harmless and should go away on their own.  The cyst on my ovary is very tiny so that one we aren't worried about either.

When I met with the urologist he said they are concerned because where the scarring on my spinal cord could be causing nerve damage in my bladder so I have to go back August 10th and 11th to have testing done on that.  Once we get the results on that we will know better what to do moving forward.

Then December 28th I will go back to have a check up with the neurologist and have another MRI done to see if the spot on my spinal cord has changed at all.  Dr. Kumar (the neurologist) said he is positive we have nothing to worry about with future back surgery or the spot changing but we need to make positive that it is stable and not getting any worse.  If we were to have surgery now the screws they put in would block the spot from being viewed in an MRI scan and we would never know if it was getting worse.  I will also go through all the pre-op work again on December 28th and if all results are good I will have scoliosis surgery on December 29th!  This is just a tenative surgery date though, nothing is for sure until I have another MRI!

Thank you for your prayers!!  This has been a roller coaster emotionally, mentally, and physically! I'm just very grateful I have access to such amazing healthcare!

1 comment:

  1. hi laura, all the best for the upcoming tests. phew... u've been on one heck of a rollercoaster ride, definitely. great to hear that the cysts are not to be worried about. hope more good news will come your way. pls do continue to share the stories of your journey with us! :D

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